This year I am so delighted to receive a disability rights fellowship, based on the United Nation's Convention on the Rights of Persons with Disabilities (UNCRPD) from the International Disability Alliance (IDA). This was as a result of being nominated by International Federation for Spina Bifida and Hydrocephalus (IF). Throughout the year I will receive mentoring and logistic support from My Right Tanzania.
The main objective of this fellowship will be to support national and local Disabled People Organizations like: Association for Spina Bifida and Hydrocephalus of Tanzania (ASBHT) and Spina Bifida and Hydrocephalus Association of Kenya (SHAK) in awareness raising on the provisions and implementation of the United Nation's Convention on the Rights of Persons with Disabilities. My Focus will mainly be towards People with Disabilities and their families, healthcare providers, teachers, legal professional and community leaders with the aim of enabling then to use UNCRPD for inclusion of people with disabilities.
I am hopeful that this will yield fruits for people living with disabilities in Kenya and Tanzania!
Sunday, April 9, 2017
Saturday, March 4, 2017
From my personal experience of living with spina bifida, hundred of friends with spina bifida and hydrocephalus who surround me not forgetting hundreds that I am serving here in Tanzania..... we are trying to bit all odds and living just like anyone else.
Globally, there are human rights treaties that intend to protect the lives of people with disabilities, however, lives of individuals with spina bifida, hydrocephalus and down syndrome do not count, slowly the world has justified this by allowing termination of pregnancies on basis of disabilities. This has diminished the worth of people with these disabilities... In my own opinion this is like being told you are not supposed to live because you have spina bifida, hydrocephalus or down syndrome.
For this reason, I am leaving you with a food of thought..... Does every life count?
Psalms 139:14 "I praise you because I am fearfully and wonderfully made....."
Saturday, October 8, 2016
As a child with disability growing up was never easy for me as I was bullied from time to time. Giving it a thought, life could have been better for me and for more children who have disabilities if the bullies and other kids could have been made aware about different disabilities.
On Friday, I was requested to give a lesson about people with special needs at the Youth with a Mission base in Mwandege coastal Tanzania and the biggest lesson that I learnt is that our society can be a better place if children are taught and made aware of different situation and realty that people are living in.
I was more impressed when the children told me that for a better community children with different disabilities should join school. Moreover I learned that most of the kids had friends, close relatives and neighbors who had disabilities but never talk about it.
If our children can learn a little more about diversity, then that will minimize discrimination hence foster integration for people with disabilities and other special groups.
Thursday, May 12, 2016
However, during my ministry activities I met a parent who has a child with a deformed hands (she had no two fingers on both hands). The girl was of school going age but she was not allowed in any school due to her mild disability. As I was in a casual conversation with her mom I asked her why she was not in school and she told me "no fingers, no school for my daughter". (Our ministry is doing a follow up to make sure that she joins school).
Wednesday, January 27, 2016
This is the beginning of another great year, it is my hope that you will have a great one.
Three years ago like today during a disability community outreach I met Bakari a boy with hydrocephalus. His parents were scared about the condition and they thought he will not make it, from home visit we managed to get him medical and rehabilitation support that has transformed his life.
Three years down the line Bakari is all grown up and has just joined kindergarten and Day Spring school at Youth with A Mission Base. This is real transformation that gives me hope. Please pray with me as I pursue this cause.
PS: The above picture is of Bakari before and afterwards.
Regards from Tanzania