Wednesday, February 7, 2018


Accessing services, work,  buildings and other social amenities are among huge challenges that affect  people with disabilities and prevent them from being productive in their communities. This can be solved by reasonable accommodation:

What is reasonable accommodation? 
  • Reasonable accommodation is necessary adjustment and or modifications to ensure that persons with disabilities enjoy and exercise their rights on equal basis with others. 
  • Reasonable accommodation can be achieved through request.
Most countries have ratified the Convention on the Rights of Persons with Disabilities (CRPD) that makes it legal for service providers and communities to provide reasonable accommodation to persons with disabilities.
There is a misconception that reasonable accommodation has to do with accessing work place. it however goes beyond working environment. It should be holistic.

Example of reasonable accommodation includes:
  1. Provision of extra time and and extra learning materials to people with intellectual disabilities.
  2. Building of temporary and or permanent ramps in buildings to allow people with physical disabilities to access buildings.
  3. Provision Brailled documents and or voting cards to people with visual disabilities during electrol process.
  4. Communities and service providers availing sign language interpreters for people with hearing disabilities.
  5. Communities and service providers can also provide tactile interpreters to people who are deafblind.
To all people with disabilities remember to ask.


Thursday, January 25, 2018

CRPD and SDG fellowship

Since the beginning of April 2017 to this moment has been my fellowship journey with International Disability Alliance and International Federation for Spina Bifida and Hydrocephalus. My main duty has been to empower a network of spina bifida and hydrocephalus organizations based the Convention on the Rights of Persons with Disabilities and Sustainable Development Goals.

Tuesday, January 9, 2018

Why Folic Acid?

The world is moving first in acknowledging the importance of health, this is evident through development agendas like goal three of the Sustainable Development Goals (SDG) and Legal framework like article 25 of  the Convention on the Rights of Persons with Disabilities (CRPD)

However, little in known about folic acid and its importance.

What is folic acid? Folic acid or folate is a section of vitamin B. Folic acid has a lot of health benefits, among them being prevention of neural tube defects to unborn babies like spina bifida (defect of the spina) and anencephaly (lack of parts of the brain).

8th to 14th of  January 2018 is world follic acid awareness week. This campaign is spear headed by the International Federation for Spina bifida and Hydrocephalus (IF). Remember to read the link for more information, eat healthy, take follic acid, share widely to protect lives of unborn babies and to stay healthy.


Thursday, January 4, 2018

How to be a Self Advocate

Have you ever found yourself in a situation where your voice is not heard, wings have been stepped on or your rights violated? That's what it takes to be a self advocate?

Such situations happen to everyone, whether you have a disability or not. however, people with disabilities tend to experience this on a regular basis.

There are important steps that will assist you in being who you are supposed to be or achieving what you want:

  • Believing in your self; this includes knowing your worth and acknowledging that your disability is part of worlds diversity.
  • Knowing your rights, benefits and responsibilities; knowing local, national and international laws that protect, promote and fulfill your rights like the Convention on the Rights of Persons with Disabilities (CRPD).
  • Discussing your questions and concerns
  • Put your concerns in writing
  • Get information and decision in writing
  • If that doesn't work use chain of command
  • Follow up
PS: The above picture was taken during a self advocates workshop for youth with spina bifida and hydrocephalus in Kijabe Kenya.

Happy new year to you all!

Monday, December 11, 2017

Solidarity for People with Spina Bifida and Hydrocephalus

This month has marked two important days: International Day for Persons with Disabilities on 3rd December and International Human Rights Day on 10th December. This year's theme of IDPD was "Transformation towards sustainable and resilient society for all"  These two days have been a good platform to advocate for the rights of persons with disabilities in line with the Convention on the Rights of Persons with Disabilities and Sustainable Development Goals.
Most human rights advocates dwell on social barriers that prevent inclusion of persons with disabilities forgetting medical barriers. As much as such efforts are good, they have worked towards depriving some basic rights to people who have disabilities. In order to achieve all rights that affect people with spina bifida, hydrocephalus and other disabilities, there is a need for an integrated developmental approach that blends both social and medical model towards addressing disability matters. This will ensure that no one is left behind.

It's time for human rights advocates to be in solidarity with people who have spina bifida, hydrocephalus and other disabilities that need medical attention.