Tuesday, October 24, 2017

Reclaiming my Health: World Spina Bifida and Hydrocephalus Day 2017

It is only two days to world spina bifida day!

"The main aim of world Spina bifida and hydrocephalus day is to raise awareness and understanding about Spina Bifida and Hydrocephalus. On this day we also advocate and promote the rights of people with these two conditions." IF

This year's focus will be Mental Health of persons with spina bifida and hydrocephalus. International Federation for Spina Bifida and Hydrocephalus (IF) launched animation  "Reclaiming my Health" highlighting the importance of an integrated approach to persons with spina bifida and hydrocephalus and their families.

United Nation's Convention of the Rights of Persons with disabilities and Sustainable Development Goals promote inclusive (health) well being for people with disabilities. People with complex disabilities like spina bifida and hydrocephalus need it more!

Help me share the message on before, 25th October 2017 and Afterwards for an inclusive  and informed society!


Friday, July 28, 2017

My Highlights; High Level Political Forum on Sustainable Development Goals

From the 9th to the 20th of July 2017, I represented IF at the High Level Political Forum on Sustainable Development Goal (These are broad development Goals that should be achieved by 2030 by leaving no one behind) in New York. My Participation was through the stakeholder group of persons with disabilities which had aim of ensuring that the UN member states report on the progress that they have made in achieving Sustainable Development Goals for People with Disabilities. 
Throughout the week, things that struck my mind were; groups that are at risk of being left behind include persons with disabilities, access to universal education and universal health is a treat that should be part of the poverty eradication plan.
Cheers Friends!

Monday, June 26, 2017

Disability Rights is Human Rights

People with disabilities have rights on equal basis with other people who do not have disabilities, however, most local and national law have failed to be specific and inclusive hence not protecting interest of people with disabilities.

United Nation's Convention on the Rights of Persons with disabilities (UNCRPD) is specific on how rights of people with disabilities can be achieved while the Sustainable Development Goals has objectives and plans of leaving no one behind.

This is the reason why I received the fellowship International Federation for Spina Bifida and Hydrocephalus (IF) and International Disability Alliance (IDA), based on the two treaties with the aim of bridging the gap in disability rights.

The knowledge that I have gained so far has enabled me to train grass root Disabled People Organization on UNCRPD and SDG with the aim of achieving inclusion for people with disabilities in Kenya and Tanzania.


PS: The first picture was during a workshop training on UNCRPD in Kenya, Second picture was when I attended Committee on the rights on the rights of Persons with Disabilities in Geneva Switzerland while the third picture was during a workshop in Kilimanjaro region Tanzania.

Sunday, April 9, 2017

Fellowship from International Disability Alliance

This year I am so delighted to receive a disability rights fellowship, based on the United Nation's Convention on the Rights of Persons  with Disabilities (UNCRPD) from the International Disability Alliance (IDA). This was as a result of being nominated by International Federation for Spina Bifida and Hydrocephalus (IF). Throughout the year I will receive mentoring and logistic support from My Right Tanzania.

The main objective of this fellowship will be to support national and local Disabled People Organizations like: Association for Spina Bifida and Hydrocephalus of Tanzania (ASBHT) and Spina Bifida and Hydrocephalus Association of Kenya (SHAK) in awareness raising on the provisions and implementation of the United Nation's Convention on the Rights of Persons with Disabilities. My Focus will mainly be towards People with Disabilities and their families, healthcare providers, teachers, legal professional and community leaders with the aim of enabling then to use UNCRPD for inclusion of people with disabilities. 

I am hopeful that this will yield fruits for people living with disabilities in Kenya and Tanzania!

Saturday, March 4, 2017

Every Life Does not Count

Life is the most precious gift ever, however, there are controversies on who has a right to live and who doesn't have a right to live.

From my personal experience of living with spina bifida, hundred of friends with spina bifida and hydrocephalus who surround me not forgetting hundreds that I am serving here in Tanzania..... we are trying to bit all odds and living just like anyone else.

Globally, there are human rights treaties that intend to protect the lives of people with disabilities, however, lives of individuals with spina bifida, hydrocephalus and down syndrome do not count, slowly the world has justified this by allowing termination of pregnancies on basis of disabilities. This has diminished the worth of people with these disabilities... In my own opinion this is like being told you are not supposed to live because you have spina bifida, hydrocephalus or down syndrome.

For this reason, I am leaving you with a food of thought..... Does every life count?

Psalms 139:14  "I praise you because I am fearfully and wonderfully made....."